Blog Posts
GLOBAL Adrenal Testing Consortium
Announcing the GLOBAL Adrenal Testing Consortium
We’re beginning a patient-led, pre-competitive effort to bring advocates, clinicians, scientists, engineers, and industry into one focused conversation on practical adrenal testing. The intent is simple: align what matters for patients now, avoid duplication, and surface the next most useful steps together.We’re keeping this early stage light-lift and confidential where appropriate. If you or your organization want to contribute a viewpoint—or simply stay informed—please email kirsten@united4rare.com with your name, role, and time zone.More details will follow as the foundation builds. For now, thank you for lending your voice to a global need.
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Why Rare Disease Can't Wait
Patient Voices: Why CortiCheck Matters
Around the world, patients with adrenal insufficiency live with fear, guesswork, and constant uncertainty. From babies like Ryan to adults managing Addison’s and Cushing’s, their stories share the same message: we need real-time cortisol monitoring. CortiCheck is being built to answer that call — bringing safety, clarity, and peace of mind to a community that deserves better.
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The Rare Disease Diagnostic Odyssey: Why Patients Deserve Better
For adrenal insufficiency (AI) patients, diagnosis is particularly challenging. Cortisol levels fluctuate throughout the day, and traditional lab testing often requires multiple blood draws, long waits, and specialized interpretation. These hurdles create delays in both diagnosis and crisis care.
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Why Rare Disease Can’t Wait
At United4Rare, we believe that innovation and equity must meet at the center of rare care. That means building tools to shorten diagnostic delays, ensuring that patient voices shape every trial, and creating pathways for solutions like CortiCheck to move from concept to clinic.
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