We’re beginning a patient-led, pre-competitive effort to bring advocates, clinicians, scientists, engineers, and industry into one focused conversation on practical adrenal testing. The intent is simple: align what matters for patients now, avoid duplication, and surface the next most useful steps together.
We’re keeping this early stage light-lift and confidential where appropriate. If you or your organization want to contribute a viewpoint—or simply stay informed—please email kirsten@united4rare.com with your name, role, and time zone.
More details will follow as the foundation builds. For now, thank you for lending your voice to a global need.
