Consulting • Advocacy • Medtech
Work with United4Rare
We partner with clinical trial sponsors, CROs, clinicians, and patient families to accelerate Rare Disease progress — with patient-centered strategy, enrollment support, and real-world guidance.
What We Do
- Patient advocacy & enrollment strategy
- Liaison between trial sites and families
- Recruitment funnels that respect rare communities
- Pre-screening, education, follow-up
- Accessibility-first materials
- Plain-language consent, travel & Medicaid navigation
- Bridge between medtech innovators and patient needs
- Real-world feedback loops
Services
- Strategic advisory & policy
- Clinical trial enrollment strategy
- Complex case navigation for families
- Patient education & materials
Trusted by patient leaders • Grounded in lived experience • Focused on real outcomes
Why United4Rare
- 45+ years combined rare-disease, clinical, and advocacy experience
- Hands-on enrollment support
- Respectful outreach at scale
- Clear, human-centered materials
- Reduce confusion, increase retention
- Fast signal from the field
- Practical insights for protocol fit
Kirsten Norgaard
Rare Disease Advocate & Research Collaborator | Patient Engagement & Community Partnerships | Certified Health Coach
Contact
Kirsten Norgaard, Founder & CEO
Email | kirsten@united4rare.com
Phone | 503-741-1710
Based in Oregon • Available nationwide
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